Eve,

No doubt, your mother is in the worst position in your father's battle. There is little she can do to make him do anything. I never understood someone wanting to endure pain but that might just be my low tolerance and having a pharmacist dad for (almost) 50 years. Too much pain can weigh on the mind and the body in the worst ways and has a cumulative effect to boot. The stress from pain can also slow down the healing process. On the other hand, morphine can push you deeper into depression. As Gary suggests, get the medical team into the loop. Everyone will benefit.

I had about twice as much of the Duragesic patches as Gary (2 75 mg). My throat was a red, raw, bloody mess and I could not swallow for many months. I just wanted to kick back and weather the storm but it wasn't that easy.

Call in the medical team, they will be trained to help guide him in less suffering.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023