I think I generaly went with the "need to know" principle -- I tried to be sure that my closest colleagues and clients were armed with enough facts from me so that they weren't engaging in idle (and uninformed) speculation. I also got some of the same eye-popping questions that Nelie mentioned -- in fact, once in a while I still get them from health care workers who may be looking at my medical history for the first time, but I guess I've developed a rather thick skin about them over the years.

Andrea makes a good point that some of the people who ask these questions could benefit from finding out more about this disease (which they could do by perusing this site). It just might help someone else get diagnosed a little sooner.

Cathy