I have just started to tell folks of my illness. Until now I had just told a close circle of friends and family that I knew would be supportive. My question is how have others coped with inappropriate comments - such as, do you have a will? what will you do when your hair falls out? will they remove the rest of your tongue?.....and on and on. Part of the reason I waited so long to tell outsiders is that I am, by nature a very private person. I don't like people feeling sorry for me and I don't like people asking personal questions. Advice anyone?