 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eric,
I am sorry you had such a runaround with MD Anderson. I am glad you finally got everything resolved and are headed to ZZ Top country! My experience was so different. I called one day, faxed biopsies, doctor notes, etc., later that day and spoke with a person twice the first day. They rapidly arranged for a telephone consult with my otolaryngologist in lieu of me going there in person since my timeframe was urgent. They concurred with my otolarngologist immediately and the entire process was within 24 hours. I was very impressed.
Good luck and I hope He guides you to exactly what you need to successfully kick the C in the a--!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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