Eric,
Definitely go to MDACC. You can't afford to take half-measures when fighting this disease. I wish we hadn't been so concerned with time, money and distance when Heather was first diagnosed. Unfortunately, I didn't find OCF until after she had her surgery, so we didn't really know any better. She did have an excellent surgeon, but it turned out that just wasn't enough.
Rainbows & hugs,
Rosie