 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | My lifelong best friend called me one day to tell me he had cancer...in both kidneys. He was scheduled to have both removed and knowing he lived in Houston, I strongly urged him to go to MD Anderson for a second opinion. He canceled the surgery the next day and went to MDACC. They took out one and part of the other. He avoided a life of dialyis and complications. That was 3 1/2 years ago.
Eric, MDACC has another way cool policy of telephone consultation second opinions with your doctor and you can be part of the teleconference. I used them before I started treatment and explained to them I was scheduled to get a PEG, mediport and some teeth extracted in 3 days and they still worked their magic.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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