Cat,
I did the PEG two weeks ago today and although its a pain sometimes, I can get nutrition into the body. I'm a big guy 325# 6'4" and they have really picked on me about NOT dropping any weight while in this fight. I've done 3 rounds of Chemo and am on my 22nd radiaton ride with a weekly dose of Erbetux and my poor mouth is just cooked. My fillings and gold crowns are a source of pain for me too... I've tried to be creative, using two of those little cotton rolls the dentists use and a little tape and gause to make myself a pair of inserts that I put in just before my radiation trip. Seems to be helping some, even tho today my tongue is beet red and tender. Hope all goes well for y'all.


Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010