Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I keep a water bottle by my bed and whenever I wake I take a sip and then usually make a trip to the bathroom. Additionally, everytime I get up our cats (8) think it's feeding time so I have to listen to their disappointment as well. I do this 4 to 5 times a night. I was never one that needed a whole lot of sleep but this is pushing it.
As I have said many times before, the dry mouth thing is the worse side effect I have to deal with and I haven't seen hardly any improvement. My wife called me over to the restaurant the other night to meet a 10 yr survivor of oral cancer. She thought that it would make me feel better, bless her heart. But when I went to his table, the first thing I noticed was a water bottle strapped around his neck. I hope my Tx leaves me differently but he has outwardly adjusted to his permanent dry mouth fine.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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