Christine has already responded to your question about the feeding tube, so I would just like to mention that the patient indeed gets full after a feeding. I used to try and force John to take more water or even a cup of tea in between feedings and he complained and said,”Do you realize I’m full.” Because they’re taking their nutrition in liquid form, we may not think of feedings as filling, but they are. John’s RO did not recommend, in fact her discouraged me from blending food and putting it in the tube. His point was that the stomach cannot “taste” food and there is a risk of clogging the tube when we put in blended food. I mention this because you talk about the Nutribullet. Talk to a dietitian or his doctor about the amount of calories he’s consuming and if, necessary, they can switch him to a high calorie Ensure/Boost or whatever.
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.