Hi BJM, was getting concerned about you. Was afraid you were so busy with day-to-day that you were not taking time out to relax, read, and write. Or your dog was requiring a whole lot more walking.
On Sunday we finally talked my brother into coming to our house so we could take care of him. It is SO nice to be home after 3 weeks. But, he is loads of work, not his fault just part of dealing with a quadriplegics needs. The bowel and bladder care added to not being able to reach anything that is within arms length while he is flat in bed makes things pretty rough. He is healing well and should be able to go home on Saturday we are hoping. He is fighting with the VA for a new special wheelchair that he can lean back every few hours to almost flat. That will take pressure off the hips and butt. It was approved in July but the VA is never in a hurry to do anything. We are hoping it is delivered very soon.
I have been baking up a storm....throughly enjoying it but very worn out tonight. I think I hit a brick wall but it is 2 am so I made myself turn off the oven and almost crawl to the recliner. Got brave and tried a few new recipes but have to wait till Jerry wakes up to find out if they are "keepers". He is my taste tester now, and thank goodness he enjoys that role.
Yes, work is needed on Doctor/Patient transition. My oncologist said I did not need to see him anymore a couple of months ago but I said oh no you don't get rid of me that easy.....I still have issues due to the chemo and radiation, a port and a feeding tube. My FP is leaving her practice the 1st of Dec and I am trying to find a new FP although she has been pretty much useless anyway. After filling out scads of paperwork for 2 FP offices that then turned me down as a new patient due to my insurance coverage this leaves me with only the kidney doc who is worse than useless.
Having worked in Doctors offices for many, many years I do so agree with you that most PA's are great. They are so much more through and whatever they do is also signed off by their preceptor. It's as if you have two sets of eyes on a problem.
I was more than elated to hear your PT is going well. It must be wonderful just to have more jaw movement and head mobility increased ! Now to lessen the jaw and neck cramping but you are even seeing improvement there too. Such great news !
I have not gotten anywhere with securing a pump. I called the DME and they said I could only have a pole for gravity feeding with my insurance. I say baloney to that and have next to no faith in Lincare, my DME. They will tell you anything that suits their bottom line. They even told me I could only have canned nutrition such as Ensure when I asked for Real Food Blends or Liquid Hope. I knew better than that. I have been busy with my brother and have not checked it out. Tried to when I got the port flush at the oncology office on Monday but the nutritionist was out that day. Got to work on that next week. Since my FP was writing my oxycodone script I need to find another FP before I run out. Now THAT is scary.
Good luck reading this, I did not proof read, to sleepy !
Wishing you and your family a very Happy Thanksgiving !
