Thank for the kind words Christine. Your response is very well written and thoughtful.

The physical issues / constraints, pain, pump feeds, can be dealt with.

The emotional swamp I'm working through is not so much based in the mortality issues, but more so in my overall expectations associated with quality of life.

I have started to look for a Therapist to provide some guidance. Perhaps, with some time and effort I can arrive at some level of acceptance / better understanding of who I am now.