Jo -
Hey! Totally agree with the "swimming on our own" summation. I do understand that the ENT's and Oncologists are entirely focused on their portion of the process and once complete, their talents are needed for the next patient. However, that doesn't mean that they couldn't provide a better transition to the next step in recovery.
But, toss in the insurance issues and perhaps not having adequate PT services available either within their system or in some cases within a regional area and the whole concept gets very convoluted.
I guess there are no easy or good answers and therefore any recommendations regarding follow up therapies are contingent upon each particular ENT.
(I've found that the Physicians Assistant is usually a better starting point regarding potential follow up therapies.)
On that note PT is proceeding well. Jaw movement is improving and as that mobility increases, communication improvements follow. Head mobility is also improving and while the jaw and neck cramping is still ongoing, they are slightly less frequent.
How is your PT progressing? (Not including responses to self invited diner guests!)
How is your brother doing? Hope his skin has started to recover.
Any progress with getting a pump? I'm curious to hear if it helps increase your daily calorie intake.
Enjoy Thanksgiving!