Just a note. I was wondering if your husband is tolerating the liquid food in his tube any better. My brother (also 32 at diagnosis - but stage 4) also had a problem with the food. He lost 70 lbs. before we finally found a product called "Serious Mass" and he was able to keep it down and maintain his weight. It is high in protien. If you are interested I can send you a website that lists its nutrients and you can discuss it with your doctor. My brother was also in a great deal of pain. The doctors were never able to get it under control. Please, if your husband continues to be in a great deal of pain make them do more tests because something is wrong.
Many people will offer their help - please accept it. If you don't need it now, maybe you can call on them later. If there is anything I can do, just say the word and I will do everything I can to help you.
Your family is in our thoughts and prayers.