Ok so we think we figured out what the problem was, the food they were trying to give was wrong for him. Ultracal, it has a ton of fiber and the fiber was making him sick. He is just getting some feeling back in his neck and face, but the pain is bearable. My new question is about the swelling in his neck, they took the drains out and he is really swollen on the surgery side. I know that the lymph system is the drainage system for the body, but does the edema ever go away? Does it find a new route? He is sitting up most of the time, only laying while sleeping at night. He says it feels really heavy. We have a hot tub, is he able to get into it with the PEG? I dont think so, but we didnt ask the doctor before being discharged.
I love this site, and Erik has been visiting too!