 "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | HI there - there are a few people here who've had salvage surgery. And others who've had issues with ORN. and yes... I've heard of that cancer here as well...
Someone... hopefully will be along soon to answer you. If not look up some of the key words...
ORN,
salvage surgery
and Mucoepodermoid cancer
and see who and what pops up. Maybe contact them directly?
hugs and best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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