Thanks Paul B,
I am really struggling with the knowledge that because I didn't get a second opinion, I have had to go through more than I needed to and that I now have complications which I might not have had. My correct diagnosis is mucoepidermoid carcinoma instead of the squamous cell carcinoma that it was diagnosed as. Mucoepidermoid carcinoma does not respond to radiation and chemo the way the squamous cell carcinoma does and at the end of the treatment, the tumor was still there and they called and said Sorry, we have not seen this in 500 cases. I am in the process of formulating my signature.
4-2014 SCC BOT rt. 2 nodes
6-2014-8-2014 Baylor Sammons Dallas,
70 gy. Carboplatin Taxol
Peg tube 5/2014-present
biopsy(10/2014) mucoepidermoid carcinoma-not SCC.
11/10/2014 M.D. Anderson radical neck dissection hemiglossectomy flap rt. lower arm
1/2015 3xs-CDDP DOCATAXEL
2/2015 CT clear- ORN right jaw.
8/2015 CT. Lt. neck two nodes,right jaw ORN worsening. Biopsy- MEC.
Surgery 9/28/2015 lt. neck dissection-remove nodes and chest flap resection. Rt. jaw dead bone removal.
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