Thanks Paul B,
I really apreciate your quick response. I think the thing that bothers me the most is still being on the feeding tube. It also is tough since I think there is a possibilty this might not be the case if they had diagnosed it correctly from the beginning. Mucoepidermoid carcinoma responds best to surgery. However, thinking like that is useless and is really unhealthy for me psychologically. As my counselor says, "you can't go down the road you didn't travel". I am also fearful of my upcoming PET scan and probable surgery (surgeries). You are right about setting goals for yourself, even if they are small ones.
Thanks, John
It sounds like you have had a battle also.

4-2014 SCC BOT rt. 2 nodes
6-2014-8-2014 Baylor Sammons Dallas,
70 gy. Carboplatin Taxol
Peg tube 5/2014-present
biopsy(10/2014) mucoepidermoid carcinoma-not SCC.
11/10/2014 M.D. Anderson radical neck dissection hemiglossectomy flap rt. lower arm
1/2015 3xs-CDDP DOCATAXEL
2/2015 CT clear- ORN right jaw.
8/2015 CT. Lt. neck two nodes,right jaw ORN worsening. Biopsy- MEC.
Surgery 9/28/2015 lt. neck dissection-remove nodes and chest flap resection. Rt. jaw dead bone removal.