 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | JPT, yes I think Ive seen similar situations discussed here over the years. Every patient has slightly different circumstances so their treatment plan can vary from someone who appears to have the same thing going on. From saying there is no reconstruction planned means to me that the doctor plans on not removing too much so it wouldnt be necessary. Any reconstruction can always be completed down the road if something needs to be tweaked.
As far as the pain is concerned, talk to your doctors as soon as you can. Nobody should have to suffer. Ive had some minor ORN myself and know how much mine hurt. Hopefully the doctor will prescribe you something to manage the pain soon.
Hang in there!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
