Jeff,

Thanks for introducing yourself. Even though I do not post much, I still read the introductions. So sad that the hospital lost your lab results. I am sorry you are having to do radiation and chemo. I also had cancer in the margins after surgery, but "only" had radiation and not chemo.

I am 2 years past radiation, and still dealing with Trismus, although things are much better than they were. I remember the days of not being able to eat, the sores, and not being able to taste food. Things will get better. Stay strong. Remember to stretch open your mouth as much as possible during and after radation to help prevent or reduce Trismus.

My life, two years past surgery and radiaton is a little different, but I am very happy and very blessed. Just stay tough during the radiation and chemo. Best Wishes!


SCC 9/2012 right upper right maxilla
Surgery 9/27/2012 to remove portion of right maxilla
DX-after surgery cancer cells in margin
RAD-33 TX ended 12/05/12
2/13-current-Severe Trismus and Radation Fibrosis
6/13-clear PET
6/13-Infection in radiation area of mouth, with surgery to drain infection
8/13-ended 40 HBOT treatments
11/13-Clear PET
3/14-Botox injections for severe Trismus
5/14-Clear PET/ 11/14-clear PET
Male age 53, non smoker, non drinker