 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Jeff! You have been thru alot! A mandibulectomy is no easy road! Ive had it done as well. Recovery can take a long time after that major surgery. Hopefully, being young should help make things a little easier.
Rads is no walk in the park. I havent heard of splitting the chemo over 2 days before. Maybe that will make it easier to tolerate??? I hope so! Focus on your intake as much as you can to meet the daily minimums of 2500+ calories and 48-64 oz of water. This will help you get thru it easier.
If you are in pain talk with your physician about getting some strong pain meds to help. I remember when I was first recovering, the pain was so bad it would literately stop me dead in my tracks mid sentence. I found relief with neurontin. It works very well with nerve pain. Maybe that would help you too.
Im glad you found our site. We will help you get thru your upcoming treatments and recovery. Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
