Carol, it sounds like good news. Believe it or not. And the docs do have some idea from experience. The hard part is everyone is really different and if they see one thing, it may not pertain to everyone. The worst thing I heard over and over is, "I've heard that could happen" when they really know it happens often.

Even with thousands of members here, what you are seeing may not be the same as anyone or many experienced the same thing. That's what makes all of this so tough. Hang in there and I hope it gets better soon. Bless you and your husband.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023