Thank you, all, very much for sharing your experiences and for your suggestions. We have had an extremely rough day. His throat and now his tongue are both getting worse. The mucositis is actually getting worse! I told him today that, effective immediately, he is back on pain meds every 6 hours, as directed. I know that the rads continue to work for a couple of weeks out from treatment, but is this normal? He will be 4 weeks out next Tues. I don't know why his RO told him that he should be noticing a difference in 2-3 weeks. Really?!! He told my hubby that he will definitely be feeling better by the time he sees him next. Well, that will be on Thurs. of next week. I really don't see that happening. If it weren't for all of you, I think I would be terrified that something was drastically wrong with him.

We are doing very well with his nutrition (PEG) and hydration. He's getting 3200-3500 cal. a day and he's been getting between 70-80 oz. of water. It's been very hot here and I don't want him getting dehydrated. He's gained 2 pounds since the end of treatment. Thank you for the reminder of really watching his calorie and water intake. I do push him on this.

Anyway, thank you all for your reassurance, above all. It really does help keep me sane and I read it to him, also. Your words have definitely helped ease his anxiety about not feeling any better, yet. You have also given both of us hope. You guys are really the best. Thanks for taking the time to read and offer your help. Wish I could give all of you a huge hug.

Take care, all,
Carol