Hi Carol - It's been a while since I was Caregiver for my son - but I still remember very well how difficult those few weeks after Rad Tx ended. But as others have said, it will get better. It gets so frustrating when it doesn't look like the person you are trying to help doesn't seem to care about doing what he should. My son, also slept in a recliner and became so very depressed and all the time he was assuring me that he was taking his meds on time and drinking enough water when in fact he wasn't. What I did was make a chart which contained all the meds he was supposed to take and the times he was supposed to take them. Also on the chart was what he ate and notes about what happened. It had all the doctor's names, phone numbers and names of the nurses and assistants. That way when I had to call I could ask for a name and I could tell them what was going on and what time it occurred. I put the chart on my son's refrigerator so he could check it and make sure he did what he was supposed to do while I was gone. I usually went home at night, but sometimes I stayed overnight. I think having the chart to deal with helped him to feel more in control and take some of the responsibility for his care. It is really important to record everything that goes into or comes out of his body. Not everyone reacts the same to situations, sometimes you just have to keep trying different things until something works. It is soooo hard seeing someone you love go through the torture and after-effects of surviving. My son also did not react well to my well-meaning efforts to help. He couldn't raise his voice much because of the pain in his mouth and throat, but I knew he was attempting to yell at me when he told me I could not understand how bad it was and that it felt like sharp knives piercing his throat to try to swallow anything. I used to cry on the way home in my car or run to the bathroom until I could hold it together. Things will get better and maybe the two of you will even manage a smile or be able to laugh at a funny movie. You are an excellent caregiver, Carol - all the more reason for you to make sure and take care of You and do something nice for yourself. Ok, now go do it.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)