OP  Senior Member (100+ posts)
Joined: Mar 2014 Posts: 110 | Quick update. Some of the intense burning may be the result of thrush. I remember when our daughter had this years ago and couldn't eat or drink for a couple of days (she was an infant and couldn't suck but for the pain). So, I got another prescription that will hopefully clear that up and maybe ease up on some of the intensity.
Thanks to all for the advice as always. I'm working to incorporate a couple of new things into my routine.
Cheers!
The Hellion
SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!
**update** passed away 3/26/16 RIP, you will be missed by many
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