I ate before each chemo about an hour before- Cheerios/milk. Zofran if I got nauseous- heaving with PEG devil- uncool! My husband is a body builder. He had me on weight gainer shakes. One shake 600 calories, 48 proteins - max good for you, min intake since swallowing may get worse. Aminos every am on empty stomach All from Bodybuilder.com. Not cheap but easy to get down and max tissue repair. My neck was fried by week 4, completely healed from a visual week 7--I used Aloe and Aquaphor like crazy. Spitting in a bottle week 5-7. Started swallowing again 2 weeks after treatment ended. Forced my self to eat as I HATED the Peg tube even though I was forced to use it- using it was not bad but my husband/sister/mom did all---I didn't do. I am thin so could feel it all the time and am a stomach sleeper- so ...Was super happy to get rid of it only to be traumatized at the removal process....brace yourself. Started at 122, at 114Lbs now and maintaining. Oh, take anti-acid daily, the chemo heartburn gets worse as you go. My Rad Dr. Was shocked at my recovery given how I was by week 5. I firmly believe my husbands prescribed protein routine is the main reason.....and it's stress free to drink 3 drinks a day vs trying to eat several meals to get same protein content,....and eating will become stressful.
Laura, 45 yrs old. HPV +16, stage 2, no lymph nodes-right tonsil. 6 cisplatin chemo, 35 rads. Diagnosed Nov 2013, port/feeding tube 11/26, started treament 12/10, completed treatment 2/4/2014. Lost taste 12/24, lost ability to swallow at rad # 23. Port removed 2/27, Peg removed 3/6. 4/3-No saliva, most everything taste awful but making myself eat-HATED PEG TUBE!
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