 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Not sure I understand. Your Signature Line states as of 5/17 starting rad for 5 weeks but you just posted 2 more weeks left?
First off please understand that everyone can react differently to this Tx so do keep that in mind with what we say.
As has been said the 2 to 3 weeks pots Tx may be his worse and is for most. Once he "walks out of that tunnel" ( he will know )and starts his true recovery he still will have many bad days mixed in with good days and S L O W L Y the bad days will go away. He will be very weak for months and his recovery can take every bit of 2 years. Nutrition and hydration are just as important during this recovery as they were during Tx. We recommend 2500-3000 cals every day.
The dry mouth phase will start once the thick stuff goes away. That will improve along with his taste over the next 2 years but again S L O W L Y. I estimate I'm 90% back to pre Tx in both categories but it did take 24 months to get here.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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