Such an appropriate topic. I am just 3 weeks post and find there is a large hole where once there were daily treatments, lab tests, and constant contact with medical professionals all having a very clear and common plan and prescribed goals.
One that that all stops, instantly. Then you are there all alone, drifting in the sea, nobody in sight, nobody asking questions, nobody to ask questions of, no contact, no routine, no set defined goal, no sense or progress toward a goal, just adrift.
I am not longing for a return of those crazy times, just stating another transition in this new life of living with cancer. Throughout the entire time, I had another "job" that took a lot of time, energy, and focus to plan and prepare and execute each day. Those hectic days are now past being post treatment.
In a new phase, the need to plot and plan this next leg of the journey begins. One with fewer visits and check in yet filled with far greater significance. Those first few scans are not taken lightly, even me being a stoic for the most part, will not be entirely surprised when the days draw down the that first PET. Is it gone? Is it all clear? Is there anything new or odd?
Meanwhile, planning to return to daily life as it was, although with a radically different view on life and meaning of how any day gets spent, becomes the focus for me now.
Adrift at sea, all alone, but say! Is that land?!
Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
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