 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Amy,
A few of us were off galavanting to Vegas and are back now. I am glad to hear "your father" (Sanford...aka Jimmy) is moving around and getting back to work. A body in motion tends to stay in motion as Sir Isaac proved. You may even tell him that I ate a bunch of spaghetti for a few months. I still have bottles of Ragu and packages of spaghetti left over from when the other foods started coming around. Everything will taste different for a while. I had all my back teeth pulled and the dentist told me that you only use your back teeth for 30% of the chewing action. I still don't believe her but I seemed to have gotten back to eating everything (in sight now). I lost about 70 lbs and started back gaining after about 7 months and still can't stop it.
I am hoping your father gets back to his old self as soon as possible. It may be slower than what he wants, though.
I am so glad other "children" of survivors have chimed in. All of you are so awesome to share your experiences so us old folks can hear what it was like from your perspective. Thanks a bunch!
And remember Amy, if there is anything you need locally, just holler.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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