Amy,

Welcome to the neighborhood! I know it is so devastating for you and your family just to hear the word cancer. I still remember first the diagnosis with my mother and then a year later when they told me she only had weeks to live. It has been four years now and I still see the doctor's face as he told me there was no hope. Even with the four weeks they thought, she still hung on for almost nine months. In many ways it was the best nine months of my life and in many ways the worst. If I had to, I would do it again in a second.

I, too, am in Dallas. October 8 last year is when I finished my treatment. You tell your dad that as tough as it gets, I know many people here in Dallas that have traveled the same road. I am here for him any time he needs someone to talk to and I would certainly visit him any time he wants the company. I can answer just about any question he has or direct him to somewhere to find the answer. If not, many people here have been through exactly what he is facing.

Your dad is so fortunate to have you trenching in and learning about his disease and issues to help him along the road to recovery. Your love will be the fuel he will need the most!

You tell your dad that like it or not he has officially become a member of "the club no one wants to join". We are a very close family here and we all have one incredible common bond. Even in the worst of times, our bond transcends all! You are here for a reason and we are glad to have you.

Hang in there, it will get a bit rougher before it gets better. If you need anything just ask.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023