Senior Member (100+ posts) Joined: Jun 2004 Posts: 155 | Amy Bob had the same eating trouble after he had eight teeth pulled before radiation.. he has found oatmeal with maple syrup is his new favorite food... he liked it before all this started ...he can't taste it now but he can smell it and he can swallow it better than even swallowing water three days after the end of treatment and feeling the worst to date. It seems to satisfy his belly and he's depended on it since surgery in june at least once a day...and this is a steak and potatoe guy. we also did macs and cheese regular and then in the blender...pretty much any pasta and creamy sauces seemed to work ...As did veggies in cheese sauce.... there are also ways to boost the calories in smoothies/shakes there are some good recipes in past posts...the eating thing is really hit or miss and will be for quite a while during and after treatment.. even when and if he gets a PEG (feeding tube)there are tips about how to make that most effective... it's a bit of trail and error but there is a wealth of info in past posts that have been a god send..use the sites search engine.When you have a question it works really well...(or just ask)...without it Bob and I would never have known how to approach pain management or the some of the side effect of medications that the nurses didn't discuss ( like constipation)You are very cool to this for Dad..As to humor that's how I cope too and sometimes my humor can be pretty dark but it's what my husband is used to and he wouldn't have it any other way cause then I wouldn't be me and that would be too wierd ( my bad jokes are sometimes a helpful bit of normal)..Prayin for all of you... Peace Denise
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04 Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
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