"Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Welcome to OCF - so sorry you joined our club.
Check out the OCF main pages - the best and most up-to-date source of info on oral cancer. Both the main pages and the forum have search functions - lots of good information contained on OCF and a terrific resource.
Great advice so far, and as others have said, go to a comprehensive cancer center. A medical team approach is better and where you are treated does make a difference!
For each appointment have a written list of questions to ask, bring someone with you to take notes, and record the conversation if the doctor will allow it. Ask for copies of any and all medical test results. Very helpful to have to review later and if you seek a second opinion (which is another recommendation). Get a notebook or binder to keep all your information in one place.
Ask if they will be doing "frozen sections" during surgery, which is a biopsy done during the surgery. Helps to make sure they "got it all" during the surgery. Use the search function on the OCF home page for more info.
Keep in mind no question is a dumb question, both to ask your doctor or here on the OCF forum.
Wishing you the best!
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
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