Thanks, all for the encouragement. I'm going to re-post, though, and see if I can get anyone who's had similar happen to speak up. SURELY there's more drugs out there than just these pitiful few! I really appreciate you guys' responses!
SCC right tonsil Dx 14 Feb 03 No surg till Apr 03 Lip resection Sep 05 "frankenface" Recurr Apr 10 2/3 tongue removed Jun 10 SPEECH/SWALLOW/DROOL challenges FUN! Dec 10 Tumor @ nodes/larynx/cart artery growing Erbitux Mar 11 Hyoid bone regrows!? recur Dec 12 begin taxo chemo 10yrs-still kickin!