Hello, all. Got the news this week (that I already intuitively knew) that my taxotere treatment is not working. The doc took one look at my blue/black fingernails, felt the increase in the size of the tumor on my neck and immediately nixed this brand of chemo. He's trying to get me on a clinical trial that includes alimta sp? (not sure-got it written down somewhere) The thing is, though, this drug only helps a small percentage of the patients that take it, and the other drugs still available help even smaller percentages.
Thought I'd come to grips with the reality of this disease-that someday it's most likely going to kill me, but I have to admit, when it finally sunk in, that I'm not ready to go quite yet and NOT like this. (It's become a bit painful and seems to change DAILY) My neck feels like it has a constant charley-horse in it, and the side of my head feels like it had a run-in with a baseball bat.
Anybody had similar and managed to get through it? I've been pretty lucky so far, just hoping it holds out...thanks in advance!


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!