Welcome to OCF! Sorry you have joined this group but glad you have found it. You are among friends and will get lots of support and info here.

I would suggest you eat everything you want. Dont worry about weight gain, even have desserts. Your sense of taste and swallowing will be off for a while so eat everything now so you dont have regrets.

Get a full blood test including thyroid count.

Get your teeth checked out by a dentist familiar with treating oral cancer patients. Any lose or questionable teeth need to be pulled now. Have flouride trays made and get prescription floride gel ready for when you begin treatments.

Get yourself a network of helpers. The more the better. Anyone who offers their help, take their name and number and let them know when the time comes you will contact them.

Always take an extra set of ears with you to doctor appointments. Write everything down. Take a biz card from each doctor and staple them onto the back of a small notebook so they are all in one place. This will help a caregiver if they would need to call one in an emergency.

Im sure there are many other tips that other members will help you with. For now read and educate yourself. An informed patient is their own best advocate.

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile