Michael,

I am 3 1/2 weeks out of treatment. About 2 weeks ago I started to see a swallow doc. See was tierd of seeing people months after tretment when the loss of function was gone for good. She wanted to start seeing patient 2 week post treatment. We started with a barium swallow test and a swallow strength test. She found the I lost over 1/2 of my strength in just 4 weeks of limited use (PEG Tube).

She gave me neck exercises and messages to do. Then she started to hook me up the the machine that measures swallow strength and make me eat and drink.

In 2 weeks my strength is now back to 90% and I am eating 90% of my cal per mouth, solid food not boost.

To make a long story short. A good doc can see if you have any serious problems and then push you to improve fast. I will graduate from swallow school by Christmas and I will have this hose out of my belly by the end of next week.

Good luck and get help if you can.


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!