Dear Emilie,

My husband has almost exactly the same diagnosis as yours. He just started radiation this week and had his first session of chemo yesterday. I think I understand what you must be feeling right now. We have decided to tell our friends and family the facts as laid out for us by the doctors. I have found that each time I tell people about this, it helps me to face it a little better. This forum has done a lot in teaching me what I need to know about oral cancer. Knowing the facts is one way of wresting control back from the disease. Good luck and lot of hugs to you.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.