Thank you for all the advice.
Dana Farber would be lovely, of course....22 yrs ago my brother had Lymphoma and he went to Dana Farber for a full recovery (thank God). My sister's public insurance will only allow Boston Medical Center but they have been wonderful to us and they have a great new cancer center that comes highly reccommended. They are affiliated with the BU Medical Campus.

So she has now had her biopsy and scans, we've met with the chemo dr and the radiation dr and the surgeon. From doing his own endoscopy, her surgeon says he tends to disagree with the oncologist who did her first biopsy and panendoscopy...he believes the tumor is smaller than that report indicates. He says it's the difference between having to take the whole tongue and voice box and being able to save a third of the tongue, have reconstruction and having a much better chance of survival. He wants to go in and look at it himself. So that's where we are now. Next week he will do that.
My sister is doing much better...I think she was formerly in the depression portion of this program. Now she tries to get out every day, she is really trying to force down food and has gone from 79 pounds to 88 lbs. She looks like a different person so I am so hopeful now. Her surgeon would like to put in a PEG next week when he does the panendoscopy because he says she is going to have to get it when she starts surgery/treatment anyway.. and "most likely forever"...and this way she can really fatten up some more before then because she is in for a rough time and she needs to be fatter LOL. So far she has agreed...with the proviso that she can change her mind that day if she wishes. Fingers crossed she won't change.

I use all the advice I read on here so often and am always telling her "the OC people" say this or that and it helps very much. And has been INDISPENSABLE in easily understanding what the doctors are telling us. She's learned all of the worst stuff this week...the things I knew but didn't want to be the one to tell her...and knowing so many of you have gotten through it, really helps.
Thank you!
Janie