 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | First off sorry for the both of you. Tell me how was she diagnosed? Was any biopsy done? Was any mention of any nodal swelling on either or both sides of her neck? As Charm posted look at my Signature Line below. No surgery with BOT primaries is quite the norm so when I read surgery and even using her arm for tissue replacement I was surprised even a tad shocked. You are the one that will have to press these issues and it will be more challanging without health ins for sure but I have been able, more than once, to get uncovered diagnosed cancer patients treated by the best cancer center in Florida at no cost to them.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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