Welcome to OCF Margie from another Aussie in NSW,
You may have seen a post I made earlier on Rachel�s thread. So glad that you found us and are here to help her.
As you and Rachel both say it is a rare cancer so I am sure she will be happy to see your post and take you up on your offer.
Let me know if you need any help navigating the site- for instance if you want to start your own thread for asking questions (if you have any).
Then again I see you have done a wonderful job creating a signature so I suspect you will do just fine. In any case if I can be of help to either of you please let me know.

History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family