Hi Rachel,

Firstly, I am also new to this forum. I just stumbled on it today and saw your post. 18 months ago I was diagnosed with Fibrous Sarcoma of my left maxillary sinus. Yes, it is very rare indeed, very difficult to deal with and is not caused by lifestyle. I had all the tests that you mentioned and this was followed by I had an operation. Unfortunately, last year my tumour came back - which is again unbelievably rare - but I have managed to get through both well. I am getting stronger now and looking forward to getting back to normal (as much as possible). I'm also from Australia, so if you have any questions, don't hesitate to ask - I'd like to be of help. All the best to you.


Margie


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42 y/o female
08/10: Lump, left cheek. CT/MRI/biopsy/PET DNT: fibrous sarcoma.
10/10: Maxillectomy/neck dissection/tracheostomy/tigh muscle graft.
12/10: RT 6 wks.
05/11: Reoccurence on right neck.
05/11: RND.
06/11: RT 6 weeks.