Hi everyone. I'm brand new to this forum and have just been diagnosed with an oral fibrosarcoma. The surgeon said it is a very rare form of cancer. Has anyone had experience with it?

We don't know much at this stage but I am getting some tests (MRI, CT, X-Ray and PET) done this week to determine how it should be treated.

The diagnosis was a bit of a surprise as I am a healthy 23 year old who has never smoked and doesn't drink, and my first biopsy came back as a benign fibroma. If anyone has any advice on managing these early days, or if anyone has had experience with fibrosarcomas then I would be very grateful

Cheers,
Rachel