Rachel,

See, you already have so many people here ready and willing to help. Although it sounds like you are in good hands at the head and neck cancer center in OZ, a second opinion is always a smart move that could make the difference between life and death.

As others have suggested, you may want to contact the doctors mentioned at MDA and Dana Farber in Boston. I live in greater Boston and would be glad to help in any way I can.

Best of luck and keep us posted,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!