Firstly, could I just say thank you all very much for your advice and kind words. I can't believe I was lucky enough to find such a supportive and caring online community

Kerri and Anne, thankyou and I looked at the links you provided. I had actually stumbled across the paper by Dr Lewis, but I hadn't investigated the Cancer Centre yet. They sound fantastic, especially the Sarcoma Centre. I am being treated by the Head and Neck centre at the Royal Brisbane and Women's hospital. I have been told they are one of the best teams in the country but in a cancer as rare as mine even my main specialist at the centre said he only sees 2-3 sarcomas a year (let alone fibrosarcomas). My cancer originates from my gum tissue (on the mandible), and my pathology report mentioned 'no bony involvement' (at that stage anyway). It has grown quite aggressively but its only been there for about 3 months. Being in such an obvious place I noticed it very quickly (thank goodness).

The centre I am being treated by has a special Head and Neck cancer clinic which I am attending this Friday. Apparently a team of people (surgeon, radiologist, oncologist etc) get together to review my test results, examine me and decide on a multidisciplinary treatment. I will ask if anyone has had experience with my cancer before.

Wishing everyone a good week ahead
Rachel