Hi, Rachel
Welcome to our forum - sorry you have to be here. I'm not familiar with oral fibrosarcoma. As as managing the early days, my husband (the patient) did well and took it one step at a time. I got lost in the hospital trying to find the parking lot.

My husband was able to manage the hard time between the diagnosis and the beginning of treatment by focusing on his work (which he loves), and on books. Facebook was a great distraction for him, as were phone conversations with his sister. Our morning walk with our dog was an important, pleasant time every morning.

Maria



CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.