Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I would suggest to get yourself 7 helpers and give every one of them a day to be helping you with your children. Then sign up about 5 more as alternates or helpers to help out with other tasks. Nobody gets thru this easily without help. You may even lose your ability to drive and speak. I lost my voice for about 2 or 3 weeks. I stopped driving about week 2 of radiation. Thats just me, not everyone stops driving. I wasnt in any condition being on some heavy meds to drive the 45 minutes each way to treatment. It hit me so hard that towards the end, I stayed in bed for about 20 to 22 hours a day. I was hospitalized for malnutrition and dehydration. Of course these things do not happen to everyone. I am not trying to scare you but I want you to see how debilitating oral cancer treatments can be. Its always better to over prepare than to be caught unprepared. Some patients sail right thru while others struggle, I was one who struggled. Please make sure you are taking very good care of yourself now. Push to eat a healthy diet with lots of calories. You need to be strong going into this so your body can withstand whatever treatment your doctors give you.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |