Here's the deal...
Get to hospital this morning, check in, wait around for an hour and a half to find out the scheduled CT Scan was for my regular check-ups and not ordered by my doctor. I say OK, follow me lady and let's go ask the doc himself. I walk right into clinic with Korinne and nurse in tow moving a bit faster than them if ya can believe it, and sit right down like I own the place. First all the nurses are like " What tha!?! You're not supposed to be moving around, have you even been discharged yet?." I say, What it look like girlies?
Anywho, here comes the doc from around the corner in a laughing tone " What the hell are you doing here Nate, Your oncology appointment is at noon!" Just trying to see why ya got me down here for a CT Scan? Then nurse speaks up, he sends her on her way kindly and tells me go back to this room and he will be right there.
Needless to say the scan was an error and he said he has everything he needs for the tumor board on wedsenday evening. He jokes with Korinne and I a bit, removes the rest of my staples from my neck then I ask him if he has any pictures of surgery, he does! So we ewwwwwww and ahhhhhhhh over those for a bit then he gets down to businees. Nate, all crap aside, you are my number one priority right now and best patient I have ever had. We will figure this out and I am waiting on a few more phone calls. We may be doing more surgery, radiation this soon may noy be a good thing but lets see what the big wigs say and by the way we put a request in for a clinical trial at MD Anderson.
So, he shuffled us off after saying that the margins were slightly positive and he would like to use those words rather than poorly differentiated, in other words he almost got it all but is nervous it may try and travel my main artery for my tongue, the one that helps you swallow and move the booger. He thinks removing all that may be the answer but just hold tight, go get fed and see you friday morning.
We go to oncology, they dont have much to say yet either but speculation and the same thing about getting with the tumor board and my referral for a clinical trial at MD Anderson. They are concerned about radiation as well, that my jaw may just crumble away if they do more so soon within just one year. So we will see what happens, sounds to me like none of them want to be the ones to kill me, but I think I would rather them than the friggin' cancer. They did say again that no node involvement and the fact it is trying to comne back in thje same spot may help them pin point the bastard. Going to bed now, any experiences, advice, encouragement? Could use a good Braveheart moment right about now. I love you all and thanks for all the cards!!!!! It's go time friends...
Your Buddy,
Nate
