There was a point where charm was right and they didn't, but that has changed. When OCF started getting legs around year 4-5, they felt that we were "competition". In the non-profit world, like in the private sector, there is real competition for relevancy, and for donors. That's the only reason that The American Cancer Society won't let us put up oral cancer booths at their events, they are afraid that a head and neck cancer patient might start working to support us vs. them. Even with a billion dollars a year in donations at ACS this happens. Others in the head and neck world have at times felt the same. We put everyone on our resources page for the most part, except some that have little resources to offer. But this is a reality.
Nancy/spohnc eventually realized that even today OCF does not have the hundreds of thousands of dollars coming in from Bristol Meyers Squibb (who paid for two printings of their book, and all the prep work to make it ready to print) and other big corporate sponsors that they do, and feels less threatened, meaning they can link to us now. But when asked if they would partner with us in April last year when we had 2,000 screening sites around the US, like the ADA and others did, they said no. It's all very strange, as you would think with common goals, we would all work towards the same ends, but that doesn't actually happen. That does not mean that I don't think they bring something to the effort, and we can with a civil approach to each other, coexist.