I took a look at their website, and decided I much prefer OCF. The local chapters seem to be in large cities, and I live in rural NW Ohio. The closest chapter to me would be Cleveland, which is 2 hours away. They don't seem to offer the online support that OCF does, and that is so valuable. It would be nice if they did refer people to OCF, because I think that there is room for both groups.
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Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.