OP Senior Member (100+ posts) Joined: Jun 2011 Posts: 188 | he's going pegless for now with dr's support. but the bigger issue is the treatment delay.
diagnosed end of may with a second opinion that took up to mid july. he was scheduled to start cisplatin/rads 8/1 which is still too far out in our opinion. rads planning occured last week, the one appt i had to miss. i learned that a treatment admin came out to talk with my parents after the mask setup and told them that he could not start until 8/9 even tho he was already scheduled for 8/1. "they" meaning the treatment center need two weeks and she told them it did not matter what the drs said or what was already scheduled, 8/9 is the only option.
i've taken my deep breath, but clearly this team needs to start communicating. both dads ears are now painful and swallowing is getting harder. his oxy isn't wokring and he cannot wait two more weeks. WHO is my best point person for tomorrow's call to get this moving? i lobbyed for this cc!
Caco CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
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