Not this caregiver, Charm - When my son, my daughter, my nurse-friend and I were meeting with the cancer team about the Rad Tx about to start, we were told about the possibility of tube feeding and presented it as a choice. At that point, none of us had the benefit of having heard about OCF and my first reaction was an emotional one - I couldn't bear the thought of my son having to get his nutrition from a tube after everything else that he had had to give up. It horrified me, so that when my son (also uninformed) said no, the rest of us all agreed wholeheartedly. We didn't realize what was ahead of us. At one point with Paul, losing weight, and not being able to eat, or drink I did present it to him as a threat - and that got him through the last few treatments without a PEG. It was rough but he made it through Tx without dehydration, albeit with a few complaints about cooking ability (he accused me of adding salt to his sodium free chicken broth!). It's true, there are no right or wrong answers here.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)